Monday, January 04, 2010


Something I wrote for Ironman's cause...reprinted from his blog.

Across the globe, there’s a forgotten and lost tribe of people. They’re the children and families of children who have Trisomy 13 and 18. Their children have been given a death sentence. This tribe is hurt and mostly alone, waking up to face death and the fear of death.
For those in this tribe, they learn not to live in the past or the future, but in the now. They learn how to be. They must be.

Their motto can be summed up in 3 “B” words: (tri be). Battle. Breathe. Believe.

Battle – against pain, fear, death, against the very cells in a body. Against anger. Against ignorance.

Breathe – trisomy babies are supposed to forget how to breathe and die. As a parent, you never take a breath for granted. And as a parent, you learn to just breathe. You keep thinking you can do something – you can’t. In fact, you can do nothing. So, as Robbie Seay the singer says: breathe out and breathe again/know that life is hard, but it’s worth breathing.

Believe – is all we can do and the best we can do. Believe that life is precious. Believe that today is a gift. Believe that there is eternal life for the redeemed. Believe that I have a Savior friend who will see me through this. Believe that there is strength in Him.

Our TRI-BE theme was created by a dad living with a trisomy 18 daughter, Zoe.


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