Things To Sing

To your kid when she wakes. Well, you gotta sing Robbie Seay. Because it was a year ago that it all started, all of it. And maybe a little Harry. And some old stuff that I used to sing when Kara would look at me and call an audible.

Jen's out in the parent room getting 2 hours so the concert goes on. She's awake and down to 38.1. Happy Thanksgiving.

38.5! Strategy Working

Rohit, the doc who offered a slightly different strategy than the previous docs, is getting his wish: pee and less fever. I am wishing for even more pee and even less fever. How's that for a Thanksgiving wish?

MMMMM. Eclipse Mints.

New Nurse!

Caty has five kids and we're filling her in on what we know. She has a Port Pirates lanyard so she must be from the neighborhood.

Caty's going to be on the ride with us for the next few days.

Almost Out Of Eclipse Mints

How did this happen? How unprepared am I?

38.8

We left to get coffee and told Zoe we wanted her down to 39.0 by the time we came back.
She listened.
She was shifted on her left side...but Beth says that didn't have as much to do with it. So...keep praying.

39.5

Going the wrong way. Not sure what the solution is. We keep waiting.

39.3

So whatever you were praying, pray it, but pray it more fervently. I need 2.3 degrees here, prayers. C'mon. :)

God of the Heavenly Lights, Healer, Friend, breathe on my daughter and heal her. You can make her whole. Only you can.

Extubate Tomorrow

Zoe's temperature is too high. They will not extubate today. A different Thanksgiving than I hoped. They won't know if this is an infection until they check late late at night. Discuss amongst yourselves.

39.4

Still too warm. Actually warmer. Keep praying. They have been giving her antibiotics as a matter of course since the operation. Blood has come back good and her lungs are clear according to the chest x-ray. Just too warm.

Temperature

Zoe's had a fever since the morning. It's actually warmer than she was. 39.2 celsius, which..I'm not converter, but I'm guessing 102? (102.2 after confirmation).

Tweddell and Frommelt both said it's typical. The PICU docs want it to go down before the extubation. Soooo....we need her to cool down.

Zoe has restraints on so she doesn't pull her tubes out. And she's trying to figure out ways to get at them. She is very resourceful. The fighting continues.

Sometime After 3

They'll be trying after 3. Not for at least two hours when fever goes down. hmm. okay. all other stats are good. they turned the vent down so that she can handle more breathing...

when i get a time

for extubation...i'll pass it on.

pastor rafferty dropping by. :) good ole pastor rafferty.

More Children's Kudos

A commenter:

Thank you for acknowledging CHW... it has become our "home away from home" and we are SO very grateful for all that they do for US, as well. We are also so blessed that they take care of all of Jacob's little friends, too (aka~ Baby Z!) I am following another site where Dr. T is back at it, hard at work on another baby's heart. Amazing. He shook salt on his onion rings yesterday at the table next to me in the cafeteria and I almost passed out in his presence! He has never operated on Jacob but has saved SO many that we care about. I am so glad that he was there with Zoe as her surgeon. There is no better combo than Dr. T + God in that OR.

God's continued blessings and lots of love from Jen (Snell), Jeremy & Jacob Schultz
www.caringbridge.org/visit/JacobJeremySchultz

DNR

Yeah, after yesterday's assurances that the DNR was gone and not applicable, apparently a digital version exists in the Children's system. So...we're making sure that is removed.

So, parents out there - make sure that if you change the DNR or request that it is removed, you really have to double and triple-check. There are too many ways that it can exist.

Look at comments from one commenter - where a DNR was set up without her consent! (not at children's-milwaukee). So make sure. and then make sure the next day.

Thank God for Children's Hospital - Milwaukee

For Dr. Tweddell, who has taken Zoe and this surgery on. For the host of concerned and caring caregivers, including Nurse Beth. Elliot and all of them. We are so grateful for the care and for the sensitivity to us.

aah parenting

hey, brit, look on the bright side. Jayden just had some food poisoning.

Believe me, brit, parenting gets exciting sometimes. ask me.

Extubate

sounds like they still want to extubate before 4 pm.

huge.

i'll probably hang here to make sure she's not rocky after.

my opinion of events: i think the floor was slow to respond to multiple alarms. slow meaning, no one responded. like people at the desk and stuff, and there's multiple alarms ringing and no one even coming to pat us on the head and say we're being alarmist.

instead...would you leave the room if you were the one witnessing those alarms alone? yeah, i thought so. jen's staying here for the duration.

right now

ethan is giving his thanksgiving program. hoping we can get a reprise sometime. maybe we'll youtube it for you guys.

kellen went a little nuts last night and was leading scorer on jv basketball- 20/7/3 and a block. 3/3 freethrows. i think that's being sent to espn/guinness as "best performance while sister is having heart surgery"

josh wowed 'em yesterday performing 4 songs for "hometown heroes" .

p.s. the first hometown heroes event was where jen and i busted out our song we wrote for the event.

zzzz

pretty sure she's sleeping now. my uneducated opinion: that's what the deal was all along. she's got some resting to catch up on.

heartrate 149, pulse ox 95 bp co2 everything very nice. sweetspot.