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Friday, July 09, 2010

Caleb


Caleb has Trisomy 18. Jen spends a lot of each day checking her Facebook and hoping he's ok. In this video, you'll see he's pretty ok.

Oh, by the way, the Social Security Administration denied Caleb's parents for Social Security. Because the SSN doesn't understand what is needed to care for a Trisomy 18 baby - he's practically dead, don't you know - they denied the application.

2 comments:

  1. Caleb is precious and so alive in this video just as Zoe was each and every day of her sweet life. I am so sorry that Trisomy 18 is treated like a "Kick Me" sign for these special needs kids. It should not be so. Praying for this sweet boy and all the Trisomy kids who need to be treated so much better. Praying for you and your family too.

    Love and hugs, Laurie

    ReplyDelete
  2. all these babies are wonderful. life is precious and I am thankful to the Lord that I can see this world differently because of them

    ReplyDelete

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A blog about the Batiansilas and the things we think. Living and breathing and fighting for life. Every last one of us.

For those new to our story, you can start...here?

We have learned the meaning of hope & pain in watching our dear sweet Zoe go home after 22 months and 7 days with us; and at her funeral, learning that my father went home after a lifetime on this earth.

For Zoe's seven brothers and sisters and her mom and me, every day is an unexpected blessing.