Thursday, July 08, 2010


Jen and I have been spending a good amount of time on our laptops. We sit in bed next to each other on our laptops. We'll comment on things to each other and then on our laptops. For me, it's work. I'm handling some grassroots stuff on a volunteer basis for a friend.

Jen's staying connected to the other moms of Trisomy babies around the world.

I have to admit that I just want her to stop. It breaks her heart. It frustrates her, it drives her crazy. She reads about children being denied medical care because they have Trisomy. About an 18 year old mom who doesn't know what to do.

More than once, Jen has asked, "C'mon. Can't one live? Can't we have one?"

Mostly, the answer is no. Today, sitting at my computer and complaining silently about all of the work I'm doing while being unemployed, I witnessed the birth and death of a Trisomy 18 baby named Cathal.

I don't know Cathal from anyone. Just I know it's not fair. This isn't fair.


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