Hi everyone...
Our minds have expanded to understand a little better just what our child is going to endure. We're happy to report that our earlier entries that she'd go through pain were incorrect.
Trisomy 18 means a lot of grim and dark things, but pain isn't one of them.
Zoe will very likely die before she's 1 year old. When...who knows. How...probably because her brain will forget how to breathe and then she'll go home.
For us, just the thought that each day isn't one of pain and battle is a relief. We were under the impression that her daily life would be one of suffering. It won't be. It won't be a life like we'd want, but it will be one where we can enjoy her face each day, enjoy her fiery spirit, know that we're blessed, and celebrate her life.
Pray for us...tomorrow is 7 days. That's a milestone of sorts for babies in her condition.
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Greg, St Patrick's Breastplate:
ReplyDeleteI arise today
Through a mighty strength, the invocation of the Trinity,
Through belief in the threeness,
Through confession of the oneness
Of the Creator of creation.
I arise today
Through the strength of Christ’s birth with his baptism,
Through the strength of his crucifixion with his burial,
Through the strength of his resurrection with his ascension,
Through the strength of his descent for the judgment of Doom.
I arise today
Through the strength of the love of Cherubim,
In obedience of angels,
In the service of archangels,
In hope of resurrection to meet with reward,
In prayers of patriarchs,
In predictions of prophets,
In preaching of apostles,
In faith of confessors,
In innocence of holy virgins,
In deeds of righteous men.
I arise today
Through the strength of heaven:
Light of sun,
Radiance of moon,
Splendor of fire,
Speed of lightning,
Swiftness of wind,
Depth of sea,
Stability of earth,
Firmness of rock.
I arise today
Through God’s strength to pilot me:
God’s might to uphold me,
God’s wisdom to guide me,
God’s eye to look before me,
God’s ear to hear me,
God’s word to speak for me,
God’s hand to guard me,
God’s way to lie before me,
God’s shield to protect me,
God’s host to save me
From snares of devils,
From temptations of vices,
From everyone who shall wish me ill,
Afar and anear,
Alone and in multitude.
I summon today all these powers between me and those evils,
Against every cruel merciless power that may oppose my body and soul,
Against incantations of false prophets,
Against black laws of pagandom,
Against false laws of heretics,
Against craft of idolatry,
Against spells of witches and smiths and wizards,
Against every knowledge that corrupts man’s body and soul.
Christ to shield me today
Against poison, against burning,
Against drowning, against wounding,
So that there may come to me abundance of reward.
Christ with me, Christ before me, Christ behind me,
Christ in me, Christ beneath me, Christ above me,
Christ on my right, Christ on my left,
Christ when I lie down, Christ when I sit down, Christ when I arise,
Christ in the heart of every man who thinks of me,
Christ in the mouth of everyone who speaks of me,
Christ in every eye that sees me,
Christ in every ear that hears me.
I arise today
Through a mighty strength, the invocation of the Trinity,
Through belief in the threeness,
Through confession of the oneness,
Of the Creator of Creation.
I must not think it strange if God takes in youth those whom I would have kept on earth until they were older. God is peopling eternity, and I must not restrict Him to old men and women." JIM ELLIOT
ReplyDeleteODE TO ZOE
ReplyDeleteA Haiku
by Sap
A drop of water
She sends waves of God's love
Rippling through space
Happy 1 week birthday to precious Zoe!
ReplyDelete"but this happened so that the work of God might be displayed in his life" May we all look with praise and thanks at what God is displaying in our lives - thanks to God for another day of life in Him!