So Zoe's stomach isn't doing well. Breathing like crap. Lying next to her last night/this morning it sounds like someone is strangling her. She isn't keeping any of her formula down. She's stopped up. She's restless, fussy.
Is that trisomy? Heart? None of the above?
What if her heart is causing the breathing and the stomach problems? What if helping her heart would help resolve those problems? We've been told that no one will help her heart. For Jen and me, the problem is that before she was born, doctors told us explicitly how they were going to help her heart.
Jen has a friend whose daughter had tetralogy of fallot. The friend explained that her daughter dealt with constipation, with restlessness and breathing issues that were all resolved via the surgery.
Will anyone do anything for her? Jen and I feel like we're watching our daughter fight to live. We wonder if we are fighting with her, or watching her fight.
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Please know that I am praying for precious Zoe and for you guys too. I am praying that someone will be able to do something for her (meaning the medical community). Asking God for a miracle of intervention for her. You are such wonderful parents.
ReplyDeleteLove, Laurie in Ca.
oh greg.. this breaks my heart...she is amazing.. i really truly wish the doctors would get off of their high horse.. and help this little girl who is begging for help!
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