Two important discoveries from Thursday's visit were that Zoe needs to eat significantly more - so we're to make her a denser formula mixture and over two times as much. Zoe was and is not expecting that much food. Our first night of trying to get her to handle that much formula, she was unable to keep it all down.
Secondly, the doctor said her hips have tightened and in the coming years, if we're given coming years, she'll need surgery on them so they can support her.
That's odd, just because she definitely as strength in her legs, but this is another symptom of this condition, and shouldn't be too surprising.
Right now, Zoe's lying next to me on the bed, in a post-bottle haze. She's yelling now that she noticed no one is paying attention to her. This is not a symptom of her condition. It's a little girl that wants attention. It's a symptom of being a little girl.
Please pray for Zoe to really get going on her eating. Yes, we will soon be considering the eating tube again, but right now it's not getting the food in - it's keeping it in.
The yelling has becoming crying. Keep praying everyone.
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