this crazy breathing episode - which included jenny and me yelling to zoe to take a breath (her heart kept beating but her ox number dove to under 10) -
may be that she has some component of sleep apnea. and it might have been narcotic related (morphine or some other opioid). we can't go to tylenol yet because of reduced kidney function. they might have another option with pain management if all others don't work.
she does need pain mgmt or that will effect her breathing as well.
at this time, her body might not be understanding that she doesn't need to breathe like before. and so it's just figuring things out.
it also might be that she has more sleep apnea than we're giving her credit for.
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It might help to know that certain sedatives can be problematic for trisomy kids. (This info from the trisomy list serve) One that is particularly problematic is chloral hydrate. I know that a drug caused propofil(spelling is wrong for sure) caused my daughter to stop breathing and the anesthetist advised us to ensure that our daughter was never given "nurse given sedatives."
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Mom to Annie-tri13.
We're praying for your little one, and for all of you. I know this hospital stuff is hard.
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